PRPH2 INTEREST COMMUNITY

PRPH2 is a gene that defines a protein called Peripherin2.  Peripherin2 supports the health of critical cells in the retina. Defects in the gene can result in vision loss. The PRPH2 Interest Community is aimed at issues of interest to the community of people affected by anomalies associated with the PRPH2 gene. This includes research status, some aspects of coping and perhaps eventually shaping research initiatives. We believe there is power in community.

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PRPH2 Interest Community is being initiated in 2020. The expectation is that in the initial six month period, we will assess the vibrancy, size and ultimately, the value the community can offer. Subsequent phases are dependent on this first phase but could include fund raising and research involvement. Right now, we need you to join the community.